So I had appealed the disability decision and suddenly received notice that I didn't need a hearing & they found me disabled. In between that I had had my Medicare stopped so I ended up with medical bills due to an arm infection and ER trip. So, with my previous insurance I had reached my out of pocket and now I get to start again. Happens quick with $3000/month injections. But I had to postpone 2 injections because of no insurance. I feel bad being on disability but I have worked hard my whole life and there's a big chance I won't collect my social security. Plus with the political climate now I'll take what I can get for as long as I can. Plus, the biggie, I get tired, wiped out, fatigued. My arms require care for the lymphedema. I figure if I totally comply there's 1 hr for each arm on the compression pump, 6 hrs apart. Plus wrapping/unwrapping: about an hour. Plus putting on compression sleeves every morning: 15 min.I asked the oncologist if there was a cheaper option just in case I lose insurance again. He said no, not in that class of drugs. Tamoxifen failed. Anastrazole failed. Faslodex is the next...until it fails.
In closing I'd like to say I hate hearing that people on disability are scamming the system. Yeah, that $900 a month is paying for my cruises. Uh, not. It's paying medical bills. And I would like to say to anyone who bitches about people on "welfare": I will gladly switch places with you. Work 60 hrs a week? I've done it. Take my cancer and we're even??
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