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'Your Hair Looks Great!'

 Dec 09, 2014 | Updated Feb 08, 2015

• Beth J. Caldwell Former civil rights attorney and mom with metastatic cancer

VLADIMIR SEROV VIA GETTY IMAGES

When I was a senior in college, I went home for winter break and decided I wanted to cut off my long hair. It had been long for a few years, and I just wanted to do something different with it. So, I went to my mom's salon and told the woman I wanted it cut short. The conversation went something like this:

Me: I want to have it shorter.

Her: Super! You'd look great with a shoulder-length style.

Me: No, I mean short

Her: Like a chin length bob?

Me: No, short. Like, above my ears. You know, short.

Her: Did your boyfriend just dump you?

Me: ...uh, no, I've been single for a while now.

Her: Are you flunking out of college?

Me: What?!?! No!

Her: Are you coming out or something?

Me: No, I'm straight, why do you keep asking me these questions?

Her: Because usually when people want to go from long to super short, it's because they had something bad happen or they're trying to make a big change in their lives.

Me: Wow. No, the only change I want to make is to the actual hair.

Her: Are you sure? Because, if I cut it that short, I mean, it'll take a long time to grow back out.

Me: Yeah, I'm sure. Seriously, can I just have it cut now?

Honestly, I got asked less questions by the minister when I was getting married than when I got that haircut. People take their hair super seriously. A lot of our identity is tied up in it. Which is why it seems to be the thing that people focus on when cancer happens. I never really thought about it that much until my hair fell out during chemo last spring and suddenly, my hair, or lack thereof, was a subject of conversation all the time.

I fucking hate my hair now, because it wasn't my choice. I didn't get asked 10,000 questions by my oncologist about whether I was sure I wanted to go bald. Instead, he just told me the Cisplatin and Etoposide would make it fall out. Cancer does that to you. A lot of the choices you used to get to make, you don't anymore. Hair is just the most visible one of them.

I get zillions of compliments on my new 'do. Even when people know I hate it, and even when they know I don't feel better when they talk about my hair, they seem to be unable to stop themselves from saying how awesome my hair looks. I get told I look great by practically everyone I know. I have been trying to understand why people seem to have such a need to comment on my appearance. Why do we tell the cancer patient "you look great"? Why do we celebrate when a cancer patient doesn't look like Skellator?

I think it's this: When you have cancer, or any other life-threatening or terminal illness, people want you to be well. They love you, and they don't want you to die. So, they cling to every scrap of hope that you are going to beat your disease, and looking like you're not dying gives them that hope.

But the truth is, you can't tell that someone is going to be cured just by looking at them. Lots of us folks with metastatic cancer are living with our disease for now, and we look and feel OK for now, but the truth is that we're going to die of this unless there is a miracle breakthrough in our now-shortened lifetimes. That our hair is growing back isn't necessarily the sign of wellness people assume it is.

And for me, living with everyone else's hope is hard. I'm living with my doctor's hope that science will find a cure in time for me, when we don't seem to be putting enough resources into research. I'm living with my husband's hope that we'll die together in a nursing home in our 90s, when even the most optimistic estimates of my life span rule that out. I'm living with my former coworkers' hope that I'll get well and come back to work with them, when I am probably going to be too busy with doctor appointments the rest of my life to ever hold down a job. I'm watching everyone around me needing to hope I will be well and somehow beat this thing, but knowing I will let them down someday.

And so they say how great I look right now, and how cute my hair is, because they have hope. And inside I want to scream. I want to say, "Wake up! This is going to kill me. There is no silver lining to this. It's not cute. Every bit of this is ugly. Every bit of this is ugly." But I don't say it, and instead, I make small talk about how lucky I am to have a nicely-shaped head. And I hope it won't be too hard for them when it turns out that looking good can't cure your cancer.

'Your Hair Looks Great!' http://m.huffpost.com/us/entry/6294338

Bowie

I was awake around 3am and checked CNN for any news I may have missed. I had to listen to Ziggy and Life on Mars. I first heard/saw David Bowie on MTV in Modern Love, Let's Dance, & China Girl. 

Cancer...

And I'm floating in a most peculiar way
And the stars look very different today...

Goal

Or ghoul...ha ha! 

Anyway, I want to hike/climb Mt. Potosi to the Lombard crash area.

http://www.birdandhike.com/Hike/Other_Areas/Lombard/_Lombard.htm

I figure fly into Vegas and rent a car. Need to do more research and planning. I need someone to go with me if possible so I don't have to hike alone. How fun! Some slots and then a hike up a mountain. ;-)

Material things

I've been doing a lot of thinking lately and I feel like my stuff is smothering me. I'm ok to get rid of things, I have a couple of bags of stuff ready for the thrift. I want to get my closet back. Right now it holds shoes I probably won't wear; books I've read; and boxes of memories. 

I know it will be futile to go through those boxes (like the Old Milwaukee Light box) because I already know I won't be able to get rid of anything in there. I can get rid of shoes and books but there is a pink bird house type thing in that box (I can see it thru the opening) that contains fuzzy chickens from past Easters and other memories of a time when I was so innocent. On the other side of the shelf are paintings my grandmother made. And a large coloring book that helped me learn about Colonial women like Molly Pitcher. Maybe it's ok to save these memory triggers??

Cancer sucks

I'm becoming angrier at cancer. Not because I have it but because people I love have it. I'm about to lose another aunt to it. She was in remission but it came back fast. I want to punch it in the face. I want to punch something! All of the millions of dollars supposedly spend on cancer research and they can't come up with a cure???
Anyone who doesn't have cancer is so very lucky. I may seem like I whine and complain a lot but I know I am fortunate to be feeling good right now.

Need a superhero name

It's just something I was thinking about today. What would you call someone who goes around helping old men who have fallen and old women who don't know how to use the self checkouts at the store? ;-)