Wednesday, March 30, 2016

Grateful

I realize that a lot of my posts are kind of negative or sad. I just want to say that I am so grateful for so many things & people in my life. I think about that a lot and I should write about it more. I used to be the world's most optimistic person. I used to get sad & down but within a short while I'd get myself out of the dumps. Not so these days when I have to search for joy and often don't find it. I  know that old optimism is deep down inside I just have a difficult time feeling it.
I love when I can laugh at something even if it's me! I still say my life is a comedy! My puppy cracks me up daily & I trip & almost fall often enough for my  best friend to find it humorous. I call my puppy Mutha pupper & he loves me anyway.😄

Facebook

Facebook is great for keeping in contact with people without actually calling them. But it's also a bit of hell. It lets me know that almost all of my friends now have kids. It makes me sad for the past. I miss my friends and the awesome times we had. They have all moved on and I feel stuck. I want that closeness again. I know that most of them never think of me because they have moved on with their lives! I got cancer & got stuck in that moment. My life repeats over & over as I get older and nothing gets better.

Thursday, March 24, 2016

How Do You Face Your Mortality-Or Do You?

How Do You Face Your Mortality – Or Do You?
By Barbara Cunnings-Versaevel
 
Most of us live as though we’ll go on forever. I know I did at one time. The idea of being mortal was a concept, one I knew but had no real meaning on a personal level for me. I just envisioned that life would carry on and I would be entitled to a long healthy life. How simple and naive!!!

When cancer came along, it blew my innocence and belief system. Cancer was my wake up call. Yes, there had been times in my life when I knew I could have been gone in an instant. Being hit by a car crossing the road was one. However, I figured I had survived and the lesson was realizing how fragile my working life was as a dancer. When your body is broken, it’s pretty hard to carry on physically. It took a few months to get myself back into working shape again. I think I thought about death. I’m sure I did, but vaguely. What I do remember was the realization that if I had died in that moment of impact, it would have been painless. That was a revelation.

A cancer diagnosis was very different. For the first time in my life, I had to face the fact that just maybe I wasn’t going to live a long healthy life. Maybe my time had run out and this was all I got.

Obviously that wasn’t the case because I’m still here many years later; however, my belief system changed. I live life differently than I did before cancer. I’m very aware of how fragile life is – that each day is a gift.

In the wake of the cancer diagnosis and the reality of my mortality, I decided to find out what I really thought about life after death. Growing up, I went to church. I knew in my head that there was a God and that there was eternal life after death. However, that ‘in my head’ thought hadn’t really penetrated to my inner being. So I embarked on a path of discovering what all this meant to me on a personal level. I did go back to a church, but mostly to find answers that had eluded me.

This brings up the difference between religion and spirituality. For me, at least, spirituality became my personal belief about what happens after death. Was there really an afterlife? How would I know? What were the signs? I was fortunate to have a pastor who understood this difference clearly. We had long discussions which helped me find my way.

During my healing path from cancer, there were many instances of happenings that I had heard about from others experiences but didn’t give much credence. These were out of body experiences, messages coming in the form of dreams, the definite awareness of spirits walking with me, synchronicities that couldn’t be otherwise explained. As time went on, I have experienced more of what I had formally thought of a ‘supernatural’. Well, it wasn’t supernatural anymore when these experiences started happening to me. They were real.

We are definitely governed in our life by something extremely powerful outside of our realm of reality. Knowing this, it makes me aware that our lives here on earth have meaning. There is a reason we are here. What we do and say matters more than we’ll ever know.

I’m not sure all of you will follow my thread of reasoning. Belief systems are very personal and we all have to come to these beliefs in our own way and time.

Personally, I find all of these experiences comforting. It makes me feel as though I really am not alone. When life got tough, which it did, there was some power, some other being, looking out for me. I could call on this power or God to me, to listen and help me through when there wasn’t anyone around in my real world to be there. This still applies. I know that many times, I am guided to where I need to be. Circumstances and opportunities appear that I could never in a million years have orchestrated. They just happen – and they work. They certainly don’t happen by anything I do.

It also makes me aware that our lives matter after we are gone. What we say and do within our circle of influence lives on as our legacy. It can be as simple as something we say to someone, some kindness or help we extended, or simply just being there for our family and friends. We never know what our actions mean to someone else.

It encourages me to be authentic and open to whatever or whoever shows up in my life. I would hope that my legacy when I’m gone is one of helping to make the world a better place. Also to give hope to others that life can be awesome even if it is challenging. Life was never meant to be easy. It’s during the challenges that we learn about our mettle by how we handle the situation.

Will I go willingly when my time comes? Probably not! I will still be thinking there are more things I want to accomplish or try in my life. However, if I’ve given everything I do my best shot, then I really can’t complain. Who knows, maybe I’ll get a second chance or another go-around to get the rest of my To Do list accomplished. I’m pretty sure I’ve been here before anyway. So, maybe we get recycled and opportunities to finish what we have started and maybe didn’t complete in another life. It’s all conjecture. We will never know for sure in this life.

Cancer does open up the window to seeing life from a different lens. I am grateful for this opening. It has enriched my life beyond measure and helped me reach out for life in ways I may not have done before. We only get so long on this earth. We might as well make the best of it and give it a good shot. In the doing, we can leave our mark.

What kind of mark or legacy would you like to leave? We really do have a choice. It’s up to us to decide. Even if life is cut short, our time here still has great meaning. Although this may not have been what we wanted to happen, it is what it is. We still have choice on how we want to live and be for as long as we have.
Hugs,
Barbara   

cancerhelphub.com

Friday, March 18, 2016

Paper gown time!

At the plastic surgeon's. I'm expecting her to tell me to wait again at least until my scan in 2 months.

Tuesday, March 15, 2016

Faslodex & results

So my lungs show "small nodules" less than 4mm in both lungs. Onc spoke with radiologist and it could be from infection. They are new since the last scan. Going to scan again in 2 months to see if things have changed. More waiting...UGH!!!! Onc said the results weren't what he was expecting. Good news with the bone scan! Nothing suspicious! Woohoo! Even my right 4th & 5th ribs have healed...whaaat??

Sunday, March 6, 2016

Yep, cellulitis

ER visit this morning with a few hours of IV antibiotics & morphine. I am SO glad they let me go home & I didn't have to be admitted. Whew! They drew on me to measure the redness. It's better now & I have the proper antibiotics.

Cellulitis?





I think I have cellulitis in my left arm. Going to ER in morning. My arm ached so I wrapped it but it was a feeling that I had never had before. Took off wrap and saw my arm was red & splotchy. Painful, hot to the touch. People with lymphedema have greater risk of developing an infection. I can't see any cuts or scrapes except on one cuticle. I did have braces put on last week so maybe that had something to do with it??
I took an azithromycin from my left over stash of antibiotics. I've been scaring myself by looking online. Entire arm aches. I'm scared because of the last infection. I'm elevating it for now. I really do not want to go to ER.


Wednesday, March 2, 2016

PT

Went back to PT yesterday. She wrapped both arms. The wrists and upper arms are down but the elbow area is up. My elbows hurt but they felt great when I took off the wraps this morning. Ahh, relief! It sucks that bandaging materials & compression garments are so stinking expensive. I wish more people knew about lymphedema. National Lymphedema Network has a good website. I'm an NLN member. 

Braces

I had braces put on on Monday. Just the top teeth. I want to get an implant for a missing incisor and the space needed to be opened up and a root moved. I had a bridge with a fake tooth and they took that off and gave me what they call a "flipper" tooth on a retainer to wear in the space. So difficult to talk with that thing in! I feel like I'm back in junior high! Ha ha!