Thursday, January 21, 2016

7, 10, 12, 15 & 16


17 Things No One Tells You About Breast Cancer  



1. Breast cancer isn’t something you can overcome with sheer will.

“I wish people would stop saying they ‘beat’ cancer. I saw a commercial the other day that featured a breast cancer survivor saying that ‘you can do anything you set your mind to.’ It’s not that simple.”—Miranda Hermanski, Facebook

2. And dying from cancer doesn’t mean someone didn’t fight hard enough.


And dying from cancer doesn't mean someone didn't fight hard enough.

Christinaloehr / Getty Images / Via thinkstockphotos.com

“I wish people would stop using ‘he/she lost the battle, lost the fight’ to me, losing has a negative connotation and cancer is a disease, not a competition. Both my parents died from cancer, they never lost any battles, they just got very sick and died.”—Ivan A. Cintron Colon, Facebook

3. Breast cancer can hit anyone…


Breast cancer can hit anyone...

Airman Magazine / Creative Commons / Via Flickr: airmanmagazine

“I am a 30-year old mother-of-two living with stage 4 breast cancer. I was diagnosed about a week after my 30th birthday. I wish I didn’t forget that just because you’re young doesn’t mean you’re invincible, and just because you’re a parent doesn’t mean you’re exempt.”—Nari Han Miller, Facebook

4. …Of any age…


“I wish I knew it was possible to get breast cancer as a teenager. When I go to appointments with my mum, people always think she’s the patient. I was very fortunate that my only treatment was surgery but juggling school and breast surgery wasn’t exactly easy.”—Beth Porch, Facebook

5. …And any gender.


My dad was diagnosed with stage 4 breast cancer last November. He’s in hospice care now. Most men find it too late because they aren’t looking.”—katymaried

6. And most people don’t know ‘why’ they got breast cancer.


And most people don't know 'why' they got breast cancer.

4thfullmood / Creative Commons / Via Flickr: 4thfullmoon

“I didn’t ‘do’ anything to get cancer. It’s not in my family, I didn’t eat the wrong foods. I just had bad cells. Stop asking me why. I don’t know.”—Julianne Beach, Facebook

7. Sometimes, all the pink ribbons and fun runs can be isolating and distracting.

Pifate / Getty Images / Viathinkstockphotos.com


Susan G. Komen / Creative Commons / Via Flickr: susangkomenforthecure


“The party atmosphere often surrounding pink ribbon promotions and campaigns conceals the harsh, devastating effects of breast cancer. We are not celebrating a holiday. This is not a sporting event where the side wearing the most team colors wins. Many women afflicted by breast cancer are troubled with how the pink marketing culture has distracted us from the goal of a cure, and as someone diagnosed with the disease in 2011, I feel the same way.”—Camille Gryszka Miller, Facebook

8. Just because someone seems incredibly brave, that doesn’t mean they aren’t also scared shitless.


Just because someone seems incredibly brave, that doesn't mean they aren't also scared shitless.

Laura Taylor / Creative Commons / Via Flickr: bookgrl

“The scars can be scary, and while you feel brave for getting through this bout, you always wonder if you’ll have another, and part of you, even if it’s deep down, worries that current or future partners might be bothered by them.”—aliciareneeg

9. It can be awkward and uncomfortable to talk about your breast cancer.


It can be awkward and uncomfortable to talk about your breast cancer.

Anna Borges / Via buzzfeed.com

“I wish I would have known that it’s be incredibly hard to talk about in certain social situations, especially work, and to not put myself down and feel awkward for being uncomfortable with it.”—Kalin Delfino, Facebook

10. But please, don’t pull away from your friends who are sick.


17 Things No One Tells You About Breast Cancer
Jenny Chang / Via buzzfeed.com

“Abandoning me because you don’t know what to say hurts worse than you saying the wrong thing. I don’t need my friends to solve my problems; I just need my friends.”—Andrea Reynolds, Facebook

11. If you have no idea where to start, just ask how you can help.


If you have no idea where to start, just ask how you can help.

BuzzFeed Life

“If you want to help someone with breast cancer, bring them a meal to freeze. Drive the kids to school, or offer to drive them to treatments and sit through them with them. Give money to the actual family in need. Babysit. Tidy up the house or the garden. Wash their car. Help with the little things that seem less important at the time. I appreciated it more than any dumb pink ribbon.”—kindacanadian

12. Catchy slogans may raise awareness, but they’re not always helpful and relatable.

“I wish people would stop saying ‘save the tatas’ etc… There is an entire person worth saving there — not just the breasts.”—yuffiebunny

13. While positivity is always welcome, please don’t downplay the severity of this disease.


While positivity is always welcome, please don't downplay the severity of this disease.

Monthian / Getty Images / Via thinkstockphotos.com

“It’s not OK because it’s ‘just breast cancer’ instead of a ‘worse cancer.’”—butterkitten

14. And remember, having a mastectomy with breast reconstruction surgery isn’t really the same as a typical breast augmentation.


“I wish my friends who had breast augmentation wouldn’t have compared their surgeries with my reconstruction after bilateral mastectomies. You. Have. No. Idea.”—tatianaturners

15. Even when someone seems to be healthy, that doesn’t mean they aren’t still dealing with mental, physical, or emotional aspects of the disease.


“I wish people would stop using the term ‘cancer free’ because you are never truly ‘free’ from cancer.”—Kelly Long, Facebook

16. Because sometimes what comes after breast cancer treatment can be the hardest part.


Because sometimes what comes after breast cancer treatment can be the hardest part.

Jenny Chang / Via buzzfeed.com

“The sense of fighting to survive leaves and you are left with depression, anxiety, debt, lack of job opportunities, lack of romantic prospects, fear of the cancer returning and a load of other issues that none of the doctors ever address. You are left alone to figure out the clusterfuck that is now your life. Your cancer family — other people with cancer you meet along the way — will become your lifelong family and will be the people who truly understand what you are going through.”—sarahh41a77a916

17. Above all, be there for your loved ones living with breast cancer, and remind them of how important they truly are.


Above all, be there for your loved ones living with breast cancer, and remind them of how important they truly are.

“I wish I could remind myself every day that I am not DYING of cancer, but LIVING with cancer. I wish I could remind myself every day that I’d rather have this life than no life at all.”


http://allhealthguidance.com/17-things-no-one-tells-you-about-breast-cancer/

Tuesday, January 19, 2016

Laughs




Faslodex

Had another injection today. Feeling nauseous tonight. That's number one on the side effect list. Ugh!
The injections weren't too painful today! Woo hoo!
Here's a good explanation of what the drug does:

Faslodex does three different things to stop the growth of cancer. First, it mimics tamoxifen by blocking estrogen from attaching itself to the special receptors on cancer cells. Think of making blueberry muffins. You fill each muffin cup with batter, and any leftover batter you have at the end–too bad, nowhere to go. Faslodex “fills” a cell’s estrogen receptors, leaving no room for estrogen. Breast cancer cells deprived of their estrogen go dormant, and almost always eventually die; some even die immediately. 

In addition, Faslodex changes the shape of the estrogen receptors themselves, causing them to become less functional; and the cancer cells of patients treated with Faslodex actually show a decrease in estrogen receptors over time. So it’s a triple threat, and is called a “second line defense” against metastatic cancer, once tamoxifen et. al. have failed to be effective.

- See more at: http://www.healthcentral.com/breast-cancer/c/78/17534/cancer-faqs/#sthash.GSeZAkzZ.dpuf

Saturday, January 16, 2016

"Your Hair Looks Great!"

THE BLOG

'Your Hair Looks Great!'

 Dec 09, 2014 | Updated Feb 08, 2015
VLADIMIR SEROV VIA GETTY IMAGES

When I was a senior in college, I went home for winter break and decided I wanted to cut off my long hair. It had been long for a few years, and I just wanted to do something different with it. So, I went to my mom's salon and told the woman I wanted it cut short. The conversation went something like this:

Me: I want to have it shorter.

Her: Super! You'd look great with a shoulder-length style.

Me: No, I mean short

Me: No, short. Like, above my ears. You know, short.

Her: Did your boyfriend just dump you?

Me: ...uh, no, I've been single for a while now.

Her: Are you flunking out of college?

Me: What?!?! No!

Her: Are you coming out or something?

Me: No, I'm straight, why do you keep asking me these questions?

Her: Because usually when people want to go from long to super short, it's because they had something bad happen or they're trying to make a big change in their lives.

Me: Wow. No, the only change I want to make is to the actual hair.

Her: Are you sure? Because, if I cut it that short, I mean, it'll take a long time to grow back out.

Me: Yeah, I'm sure. Seriously, can I just have it cut now?

Honestly, I got asked less questions by the minister when I was getting married than when I got that haircut. People take their hair super seriously. A lot of our identity is tied up in it. Which is why it seems to be the thing that people focus on when cancer happens. I never really thought about it that much until my hair fell out during chemo last spring and suddenly, my hair, or lack thereof, was a subject of conversation all the time.

I fucking hate my hair now, because it wasn't my choice. I didn't get asked 10,000 questions by my oncologist about whether I was sure I wanted to go bald. Instead, he just told me the Cisplatin and Etoposide would make it fall out. Cancer does that to you. A lot of the choices you used to get to make, you don't anymore. Hair is just the most visible one of them.

I get zillions of compliments on my new 'do. Even when people know I hate it, and even when they know I don't feel better when they talk about my hair, they seem to be unable to stop themselves from saying how awesome my hair looks. I get told I look great by practically everyone I know. I have been trying to understand why people seem to have such a need to comment on my appearance. Why do we tell the cancer patient "you look great"? Why do we celebrate when a cancer patient doesn't look like Skellator?

I think it's this: When you have cancer, or any other life-threatening or terminal illness, people want you to be well. They love you, and they don't want you to die. So, they cling to every scrap of hope that you are going to beat your disease, and looking like you're not dying gives them that hope.

But the truth is, you can't tell that someone is going to be cured just by looking at them. Lots of us folks with metastatic cancer are living with our disease for now, and we look and feel OK for now, but the truth is that we're going to die of this unless there is a miracle breakthrough in our now-shortened lifetimes. That our hair is growing back isn't necessarily the sign of wellness people assume it is.

And for me, living with everyone else's hope is hard. I'm living with my doctor's hope that science will find a cure in time for me, when we don't seem to be putting enough resources into research. I'm living with my husband's hope that we'll die together in a nursing home in our 90s, when even the most optimistic estimates of my life span rule that out. I'm living with my former coworkers' hope that I'll get well and come back to work with them, when I am probably going to be too busy with doctor appointments the rest of my life to ever hold down a job. I'm watching everyone around me needing to hope I will be well and somehow beat this thing, but knowing I will let them down someday.

And so they say how great I look right now, and how cute my hair is, because they have hope. And inside I want to scream. I want to say, "Wake up! This is going to kill me. There is no silver lining to this. It's not cute. Every bit of this is ugly. Every bit of this is ugly." But I don't say it, and instead, I make small talk about how lucky I am to have a nicely-shaped head. And I hope it won't be too hard for them when it turns out that looking good can't cure your cancer.

'Your Hair Looks Great!' http://m.huffpost.com/us/entry/6294338

Monday, January 11, 2016

Bowie

I was awake around 3am and checked CNN for any news I may have missed. I had to listen to Ziggy and Life on Mars. I first heard/saw David Bowie on MTV in Modern Love, Let's Dance, & China Girl. 

Cancer...


And I'm floating in a most peculiar way
And the stars look very different today...

Sunday, January 10, 2016

Goal

Or ghoul...ha ha! 
Anyway, I want to hike/climb Mt. Potosi to the Lombard crash area.

I figure fly into Vegas and rent a car. Need to do more research and planning. I need someone to go with me if possible so I don't have to hike alone. How fun! Some slots and then a hike up a mountain. ;-)